Skip to main content

Dear fingers

Dear fingers,

Let me tell you sometimes you frustrate me. You are bony, flexible. You have a mind of your own. You love to wiggle and move when I just want you to be still. My nail lady tries to paint your nails and you just love to tease her by moving all around. Monika tries to get a picture of you and you, pinky, decide to stick up  in the air. 
I try to grab something and you just decide to tense up and not want to grasp the object. I can't hold a pencil properly, I can't type with the correct hand formation, I can't hold a drink without being nervous your going to spazz out and spill the drink, I can't get the card out of the slot in my wallet fast enough or sometimes at all. 
BUT as much as I love to hate you. You are MINE. You are evidence of a CP warrior. You, my dear fingers, are unique. You remind me of a beautiful story that I have gone through. 



This posting is inspired by my beautiful friend Monika who is pursuing photography and is doing a series on medical conditions. I wanted to highlight one of my biggest insecurities which are my fingers because they are so different. These braces on my fingers are to help prevent arthritis and to help my muscles to not spazz out and bend backwards. These fingers have gone through a lot of therapy and do not function well but they do allow me to do every day things for the most part. I take medication to help with the shakiness and tenseness of my muscles. They frustrate me because they are so obviously different. They don't look normal at all even when resting which is hard. I am still learning to embrace them but they are mine and they remind me that yes I have a physical disability and yes I do things differently but I do them in my own unique way

Comments

Popular posts from this blog

What Does It Mean to Have CP?

You know this month is CP awareness month so I thought it would be fitting to write about what I feel everyday..So here we go When you wake up and get out of bed and think man my leg muscles are tight. When you walk into a store and you get the looks. The looks of curiosity, looks of wow that girl sure walks different, looks that make you feel like you just don't fit in. When you go to pay and you are struggling getting that money or credit card out and you start to blush because you know that cashier or the person behind you is thinking "that poor girl". When you are asked to repeat yourself 2-3 times because that person can't understand you and you just want to say never mind. When you have to buy new shoes more often than normal because you ruined the toe part of your shoe or you have a hole on the bottom due to walking toe-heel instead of heel-toe. When you have to use adaptive tools like a button hook. When you can't open a water bottle or you spill your dr...

Struggle is Real with Adult CP

 Here is something that frustrates me about the state of California. Basically since I was diagnosed with CP I went to CCS (California Children Services). They provide free occupational and physical therapy until your 21. This is so awesome and I would go twice a week until high school where I would do more check ins because I was becoming more independent and doing so well I did not need it as much. Now I know what your thinking...um Nicole why are you frustrated with this? Well did you noticed I bolded until your 21? This is the issue. Once you turn 21 they are like bye bye good luck with the rest of your life. It has been difficult because you get dropped off and on your own without any recommendations of where to go next in life.  Most of you know that hot yoga has been a life saver for me and has basically become my physical therapy and it has been great until...covid. Due to the shutdown it also caused a shut down of my body because my physical therapy (aka yoga) was tak...

So What Did You Do In Kenya?

Jambo!! I am made it back from a life changing trip in Kenya! I will be posting a few blog posts about stories that happened there but first I wanted to give you all an overview/timeline of what I did everyday over there July 7 - We landed at 2 in the morning! As we are all waiting to get our luggage we notice that no new luggage is coming out. Hmmmm what is wrong?? Yeah well all 90  of us lost  our luggage. Our flight out of LAX was delayed which made us have to rush to our next plane in Turkey. The airport personnel decided they did not have time to transfer our luggage to the next plan which ended up for us not getting our luggage. We got like an hour of sleep and then we had to wake up and start our day. We went to pangani which is the main school we worked at. We were greeted and had an opening ceremony from all of the kids. Then we got to take a social worker and walk around the Mathare Valley. We were able to go into one of the shanty's and pray over a sick girl ...